Just One Month To Go

We just need Cora to stay seizure free for one more month. If she stays seizure free we can get her an EEG and see what her brain is up to. We know that is isn't a guarantee that we can start weaning her off of her meds but we are still looking forward to it. Wish us luck.

Growing and Growing

Cora is standing on her own really well now. And that tooth finally made its way through today. She is a babbling fool and we can now tell when she sees Cowbell or Baron so her language skills are definitely developing.

Her iron levels are now normal and we are anxiously awaiting the okay to take her off the iron supplement.

Here are some recent pics -





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An artcle in Parenting Magazine

I came across this on another mother's page. Her son Charlie was diagnosed with IS in a very similar way to Cora. He is doing really really well.
http://www.parenting.com/article/-/Health/Love-and-Instinct
It is spookily similar to Cora's story and it brought me a lot of comfort.

One month seizure free

Cora has been seizure free for over 30 days. It has been so great having our little girl back to herself. She is getting into everything and trying to stand on her own. She is also getting her fourth tooth. So she has the two middle ones on the bottom and two fangs. It is hilarious.

We also found out that she is anemic. So we have been giving her iron everyday. She hates it! And I don't blame her. I tasted just a tiny bit and it tasted like I had carried gross dirty change in my mouth all day. This is totally unrelated to the IS, just one of those baby things. So we will go at the end of next week to get her tested again and hopefully we can stop giving her iron.

We are just looking forward to the end of September. If she is seizure free then she gets her EEG and her follow up appt. She also has her 12 month Well Child Check. That means vaccines but we like going and seeing Dr Mason. And of course her 1st birthday. I can't believe she is already 10 months old.