It appears the minuscule dose of Topamax we are giving Cora is making a difference. She only had one episode of 8 spasms yesterday. We know that some drugs only work for a short period and then for whatever reason stop but this really encourages us that a low dose of Topamax is going to be enough.
As far as side effects go, we haven't really noticed any. She might be a little sleepier, a little fussier, and possibly it is harder to get smiles from her. However she did cut her first tooth this week and it is very likely that what we have seen (or imagined) is related to that. After all we know when one tooth comes in another follows shortly, so she is probably in a good deal of discomfort due to that. And honestly, if this is our child in the pain of teething, then we are really lucky because she is taking it on really well.
We will up the dosage on Thursday and will continue to do so for 3-4 weeks. If at that point her seizures are gone then we will get another EEG. If they aren't then we will consider another drug.
It's a small victory but we will take whatever we can get!
Tuesday, July 1, 2008
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5 comments:
oh it was probably the tooth. My kid is a really ahppy baby, but when a tooth comes in, she just gets clingy and fussy and just not happy happy.
GO CORA! She looked so good on Saturday-truly the most adorable baby in the world! The news just keeps getting better and better. You are doing an amazing job getting her exactly what she needs and then making sure it is the correct medication. I love that little girl and her mom too! Can I borrow her tooth please? Love you all, Barbie
That is SO SO awsome! I am so glad to hear that things are going well so far. You and Cora are never far from our thoughts.
Gret,
You and Kris are doing the best job as parents, we couldn't be prouder. I miss my "Cora Morning Wake-ups". Granny and Gramps need a big dose of Cora Elizabeth. Love you 3 so much, Mom
i saw gretch and cora at safeway and she wouldn't show me her tooth. she kept her tongue on it. she is just so dang cute! i'm so happy that her meds aren't bugging her that much. i was so glad to see her and can't wait to hang out with her in goldendale.
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