Cora had her eye exam today and they didn't see any tubers. This is hugely relieving! That, I believe, is all the testing we are doing for Tuberous Sclerosis. We know we can't be 100% sure she doesn't have it, but it really looks that way.
Also Cora has been seizure free for a week. She has learned to crawl, pull herself up on the furniture and loves to clap. It has been a really great week for us. We still need to up her Topamax to the therapeutic level for her weight (which is still a very low level) for a couple of weeks. If she is still seizure free we will get another EEG to see what her brainwaves are up to.
It's been a good week.
4 comments:
Awesome news!! Really nice to see you two on Tuesday night. Cheers.
That is such awesome news. I am so happy to hear she is doing well. love you guys and hope to hear from you agian soon
Michelle
Gretchen! I am thrilled at Cora's progress, your mom told me she had been seizure free for a week and I felt like throwing a party. I can't wait to see her crawling . . . I need another Cora fix! I loved the video of her signing "more". She's a genius of course, just like you were when you were a baby. Talk to you soon and lots of love to you all. Barbie
Found you from the Yahoo IS group. Congrats on Cora getting SF so quickly. I hope the Topamax continues to work for her.
Jen
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